The Care Act 2014: Strengths-Based Assessment and care and support planning specifically tailored for individuals with Autism Spectrum Disorder (ASD), neurodivergence, and/or mental health needs, and aligned with the Care Act 2014 and trauma-informed principles
This page supports autistic and neurodivergent young people, their families, and carers in preparing for assessments under the Care Act 2014 or other statutory frameworks. It can be used:
• Before an assessment to help individuals reflect on their strengths, needs, and preferences.
• During supported assessment to promote shared understanding and ensure the process is trauma-informed and neurodivergence-friendly.
• As a conversation tool between practitioners, families, and individuals to co-produce care and support plans that are meaningful, inclusive, and rights-based.
• By exploring the principles and strategies outlined below, individuals and families can feel more confident, informed, and empowered to participate actively in planning for care and support.
Strengths-Based Approach in Assessment and Care Planning is tailored to individuals with ASD, neurodivergence, and mental health challenges, offering examples of how unmet needs may manifest across wellbeing domains. It promotes a holistic, person-centred approach that integrates trauma-informed principles and supports equitable access to care and support. It emphasises co-production, personalisation, and the importance of understanding trauma, sensory processing differences, and communication styles. The approach is grounded in the wellbeing principle and aims to empower individuals by recognising their capabilities, preferences, and goals.
Strengths-Based Approach in Assessment and Care Planning focuses on identifying and building upon the individual's existing strengths, interests, and capabilities. This approach promotes empowerment, resilience, and self-determination, rather than focusing solely on deficits or problems. Trauma Informed and Neurodivergence-Friendly Relationship-Based Practice describes principles for building trust and safety in relationships with neurodivergent individuals and explores how trauma may manifest differently in neurodivergent individuals. Highlights atypical responses such as shutdowns, masking, sensory overload, and increased vulnerability to misinterpretation or exclusion.
‘The national strategy for autistic children, young people and adults: 2021 to 2026’, provides a roadmap of activity to demonstrate the transformation of autistic people and their families’ lives by:
• Improving understanding and acceptance of autism within society
• Improving autistic children and young people’s access to education and supporting positive transitions into adulthood • Supporting more autistic people into employment
• Tackling health and care inequalities for autistic people
• Building the right support in the community and supporting people in inpatient care
Under the Care Act 2014, unmet needs—whether they meet eligibility criteria or not—can significantly affect one or more aspects of a person’s wellbeing. This includes individuals with Autism Spectrum Disorder (ASD), neurodivergence, and mental health needs, whose support requirements may be misunderstood or under-assessed.
Unmet social care needs (eligible and/or non-eligible) may have a significant impact on some or all aspects of wellbeing (as described by the Care Act 2014, and the core purpose of care and support is to help people to achieve the outcomes that matter to them in their lives.
The Care Act 2014 - Statutory guidance - Care and support statutory guidance – Key points
❖ 1.2 Local authorities must promote wellbeing when carrying out any of their care and support functions in respect of a person. “Local authorities must promote wellbeing when carrying out any of their care and support functions in respect of a person. This may sometimes be referred to as ‘the wellbeing principle’ because it is a guiding principle that puts wellbeing at the heart of care and support”.
❖ 1.3 The wellbeing principle applies in all cases where a local authority is carrying out a care and support function, or making a decision, in relation to a person. For this reason, it is referred to throughout this guidance. It applies equally to adults with care and support needs and their carers
❖ 1.5 - Definition of wellbeing - ‘Wellbeing’ is a broad concept, and it is described as relating to the following areas in particular: • personal dignity (including treatment of the individual with respect) • physical and mental health and emotional wellbeing • protection from abuse and neglect • control by the individual over day-to-day life (including over care and support provided and the way it is provided) • participation in work, education, training or recreation • social and economic wellbeing • domestic, family and personal • suitability of living accommodation • the individual’s contribution to society
❖ 1.6 The individual aspects of wellbeing or outcomes above are those which are set out in the Care Act, and are most relevant to people with care and support needs and carers. There is no hierarchy, and all should be considered of equal importance when considering ‘wellbeing’ in the round
❖ 1.7 Promoting wellbeing involves actively seeking improvements in the aspects of wellbeing set out above when carrying out a care and support function in relation to an individual at any stage of the process from the provision of information and advice to reviewing a care and support plan
❖ 1.23 In particular, the Care Act is designed to work in partnership with the Children and Families Act 2014, which applies to 0 to 25 year old children and young people with SEN and Disabilities.
In combination, the 2 Acts enable areas to prepare children and young people for adulthood from the earliest possible stage, including their transition to adult services. This is considered in more detail at chapter 16.
Chapter 16 of the Care and Support Statutory Guidance under the Care Act 2014, - local authorities’ legal duties for transition from children social care to adults social care
❖ 16.11 For young people with special educational needs (SEN) who have an Education, Health and Care (EHC) plan under the Children and Families Act 2014, preparation for adulthood must begin from year 9 - see Special Educational Needs & Disability (SEND) Code of Practice ‘Preparing for Adulthood’. The transition assessment should be undertaken as part of one of the annual statutory reviews of the EHC plan and should inform a plan for the transition from children’s to adult care and support.
❖ 16.12 Equally for those without EHC plans, early conversations with local authorities about preparation for adulthood are beneficial – when these conversations begin to take place will depend on individual circumstances. For care leavers, local authorities should consider using the statutory Pathway Planning process as the opportunity to carry out a transition assessment where appropriate.
❖ 16.36 Similarly, for young people and carers who do not have an EHC plan, but who already have other plans under children’s legislation, the transition assessment should build on existing information.
Fluctuating needs
❖ 6.58 As the condition(s) of the individual at the time of the assessment may not be entirely indicative of their needs more generally, local authorities must consider whether the individual’s current level of need is likely to fluctuate and what their on-going needs for care and support are likely to be. This is the case both for short-term fluctuations, which may be over the course of the day, and longer term changes in the level of the person’s needs. In establishing the on-going level of need local authorities must consider the person’s care and support history over a suitable period of time, both the frequency and degree of fluctuation. The local authority may also take into account at this point what fluctuations in need can be reasonably expected based on experience of others with a similar condition. It is important to recognise the benefit of adopting this comprehensive approach to assessment as the consideration of an individual’s wider wellbeing may allow local authorities to provide types of care and support, or information and advice which delay or prevent the development of further needs in the future.
❖ 6.42 In carrying out a proportionate assessment local authorities must have regard to:
• The person’s wishes and preferences and desired outcomes.
• The severity and overall extent of the person’s needs. For example, an individual with more complex needs will require a more detailed assessment, potentially involving a number of professionals. A person with lower needs may require a less intensive response.
• The potential fluctuation of a person’s needs, both adults and carers. For example, where the local authority is aware that an adult’s needs fluctuate over time, the assessment carried out at a particular moment may take into account the adult’s history to get a complete picture of the person’s need Interpreting the eligibility criteria.
Interpreting the eligibility criteria
The first condition - 6.104 The adult’s needs arise from or are related to a physical or mental impairment or illness. The first condition that local authorities must be satisfied about is that the adult’s needs for care and support are due to a physical or mental impairment or illness and that they are not caused by other circumstantial factors. Local authorities must consider at this stage if the adult has a condition as a result of either physical, mental, sensory, learning or cognitive disabilities or illnesses, substance misuse or brain injury. The authority should base their judgment on the assessment of the adult and a formal diagnosis of the condition should not be required.
The second condition - As a result of the adult’s needs, the adult is unable to achieve 2 or more of the outcomes set out in the regulations 6.105 The second condition that authorities must consider is whether the adult is ‘unable’ to achieve 2 or more of the outcomes set out in the regulations. Authorities must also be aware that the regulations provide that ‘being unable’ to achieve an outcome includes any of the following circumstances, where the adult:
▪ is unable to achieve the outcome without assistance. This would include where an adult would be unable to do so even when assistance is provided. It also includes where the adult may need prompting for example, some adults may be physically able to wash but need reminding of the importance of personal hygiene.
▪ is able to achieve the outcome without assistance but doing so causes the adult significant pain, distress or anxiety. For example, an older person with severe arthritis may be able to prepare a meal, but doing so will leave them in severe pain and unable to eat the meal.
▪ is able to achieve the outcome without assistance, but doing so endangers or is likely to endanger the health or safety of the adult, or of others – for example, if the health or safety of another member of the family, including any child, could be endangered when an adult attempts to complete a task or an activity without relevant support.
▪ is able to achieve the outcome without assistance but takes significantly longer than would normally be expected. For example, an adult with a physical disability is able to dress themselves in the morning, but it takes them a long time to do this, leaves them exhausted and prevents them from achieving other outcomes.
The third condition - As a consequence there is, or there is likely to be, a significant impact on the adult’s wellbeing
6.107 The third condition that must be met is that local authorities must consider whether the adult’s needs and their inability to achieve the outcomes above cause or risk causing a significant impact on their wellbeing. The meaning of wellbeing is set out in Section 1 of the Care Act and more detail is described in chapter 1 of this guidance and include:
a) personal dignity (including treatment of the individual with respect)
b) physical and mental health and emotional wellbeing
c) protection from abuse and neglect
d) control by the individual over day-to-day life (including over care and support provided and the way it is provided)
e) participation in work, education, training or recreation
f) social and economic wellbeing
g) domestic, family and personal relationships
h) suitability of living accommodation
i) the individual’s contribution to society
🔍 Unmet social care needs (eligible and/or non-eligible) - Examples of Impact Across Wellbeing Domains


Examples of wellbeing being met, aligned with the Care Act 2014 wellbeing domains
🧍 Personal Dignity - Respectful treatment and recognition of the individual’s worth
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Being spoken to respectfully and not dismissed due to communication differences
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Having privacy during assessments or care tasks
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Being involved in decisions about your own care and support
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Use preferred communication styles (e.g., visual aids, written formats, quiet environments).
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Involve the person in all decisions—ask, don’t assume.
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Respect sensory needs (e.g., avoid strong scents, allow noise-cancelling headphones).
❤️ Physical and Mental Health and Emotional Wellbeing - Support for both physical and psychological needs
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Access to sensory-friendly healthcare environments
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Support for managing anxiety, depression, or trauma
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Help with routines that support sleep, nutrition, and emotional regulation
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coordinate care across services (e.g., GP, mental health, autism support).
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Offer trauma-informed support—recognise past experiences and avoid re-traumatisation.
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Support self-regulation strategies (e.g., stimming, quiet time, sensory tools
🚫 Protection from Abuse and Neglect - Safeguarding from harm, exploitation, or mistreatment include self-neglect
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Safeguarding from bullying or exploitation, especially in unfamiliar settings
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Support to understand and assert personal boundaries
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Help recognising unsafe situations or relationships
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Ensure safeguarding is neurodiversity-aware—train staff to recognise subtle signs of distress.
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Empower individuals to understand rights and boundaries.
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Use accessible safeguarding materials (e.g., easy-read formats, visual guides).
🎛️ Control Over Day-to-Day Life - Choice and autonomy in how care and support are delivered
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Choosing who supports you and how - Use co-production—involve the person in designing their care
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Having input into your daily schedule and routines
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Using communication tools (e.g., visual aids, apps) to express preferences
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Offer flexible support plans that adapt to changing needs.
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Respect routines and preferences, even if they seem unusual to others.
💼 Participation in Work, Education, Training or Recreation - Opportunities to engage in meaningful activities
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Access to autism-friendly volunteering or training opportunities
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Adjustments in the workplace or classroom (e.g., quiet spaces, flexible hours)
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Support to explore interests and build confidence
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Provide reasonable adjustments (e.g., quiet spaces, flexible hours).
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Link with autism-friendly employers or training providers.
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Support disclosure and self-advocacy in professional settings.
☐ Social and Economic Wellbeing - Inclusion, financial stability, and access to community resources
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Help managing finances or benefits
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Support accessing community resources or social groups
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Assistance with budgeting or planning for independence
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Help with budgeting, benefits, and financial literacy.
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Support access to community resources (e.g., libraries, social groups).
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Recognise the impact of poverty and social exclusion on mental health.
💞 Domestic, Family and Personal Relationships - Support to maintain and develop important connections
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Support to maintain contact with family or trusted friends
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Help navigating social situations or resolving misunderstandings
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Encouragement to build new relationships in safe, supported ways
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Facilitate safe spaces for connection (e.g., peer support, family mediation).
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Support communication in relationships (e.g., social stories, relationship coaching).
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Respect chosen families and non-traditional relationships.
🛏️ Suitability of Living Accommodation - Safe, appropriate, and accessible housing
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Housing that meets sensory and accessibility needs
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Support with tenancy, bills, or household tasks
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Help finding safe, stable accommodation
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Assess sensory and accessibility needs in housing.
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Support tenancy sustainment (e.g., help with bills, routines, landlord communication).
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Advocate for housing rights and adaptations.
🧩 Contribution to Society - Recognition and support for the individual’s role and value in their community
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Opportunities to volunteer, share lived experience, or mentor others
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Recognition of strengths and talents (e.g., art, writing, advocacy)
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Support to engage in community projects or peer networks
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Recognise and celebrate strengths (e.g., creativity, advocacy, lived experience).
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Support volunteering or mentoring roles.
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Encourage civic participation (e.g., voting, community projects).
STRENGTHS-BASED APPROACHES WITHIN THE CARE ACT 2014
Strengths-based (or asset-based) approaches focus on individuals’ strengths (including personal strengths and social and community networks) and not on their deficits. Strengths based practice is holistic and multidisciplinary, working with the individual to promote their wellbeing. It is outcomes led and not services led. The Care Act 2014 requires local authorities to specifically “consider the person’s own strengths and capabilities, and what support might be available from their wider support network or within the community” (SCIE, 2024).
Strengths-based ways of working can only be achieved through partnership working and collaboration with a wider range of statutory partners and other organisations. This ensures that there is strong commitment to strengths-based ways of working across the local place, Tackling inequalities in care for people with learning disabilities and autistic people and that people are supported to access a broad range of community-based resources, are not impeded by bureaucracy, or bounced from one person to the next. Strengths-based models shift the focus from what people with learning disabilities and autistic people cannot do to what they can do with the right support. The aim should be to involve people, families, and carers in solutions that respond to the individuals’ strengths and needs, recognising that people with disabilities have the potential to progress.
PERSON-CENTRED CARE AND SUPPORT WITHIN THE CARE ACT 2014
Starting with the ethos that everyone is unique and has immense potential, our role as professionals is to help people discover their innate skills, find out what they want from their lives, and provide support to help individuals in reaching their life goals. Practitioners should put time and resources into understanding the person they are supporting, their family circumstances, find out the support needs of their careers, and develop a holistic support plan. Professionals must actively involve people with a learning disability and autistic people in all decisions that they are affected by involving family members, friends, carers or independent advocates if this is what the person wants.
If the person is aged 16 or over and lacks the capacity to make a decision, professionals must follow the Mental Capacity Act 2005. Listening and empathy skills are crucial to supporting people with learning disabilities and autistic people. The key principle should be that each person’s needs are looked at on an individual basis and preferences must be taken account of individually.
Strengths-Based Approach within assessment and care planning, specifically tailored for individuals with Autism Spectrum Disorder (ASD), neurodivergence, or mental health needs, and aligned with the Care Act 2014 and trauma-informed principles
Advocating for reasonable adjustments and inclusive communication during assessments is essential under the Care Act 2014, especially for individuals with autism, neurodivergence, or mental health needs. This approach focuses on:
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What matters to the person, not just what’s wrong.
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Building on existing strengths, interests, and relationships.
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Promoting autonomy, dignity, and wellbeing.
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Reducing retraumatisation by validating lived experience and offering choice.
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Recognise Neurodivergent Strengths
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Sensory awareness, pattern recognition, creativity, honesty, deep focus.
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Avoid pathologizing traits—celebrate and support them.
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Validate Lived Experience of Trauma
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Acknowledge masking, rejection, and systemic failures.
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Use relational safety and consistent staffing to rebuild trust.
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Co-Produce Goals and Outcomes
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Focus on meaningful outcomes, not just service eligibility.
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Use Accessible and Affirming Communication: Visual aids, easy-read formats, AAC tools.
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Respect sensory and processing needs—allow time and space.
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Rebuild on Informal and Community Support
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Recognise and sustain existing support systems.
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Promotes wellbeing across all domains.
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Encourages least restrictive options and choice and control.
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Supports early intervention and preventative planning
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Promote and support recovery.
🌟 Strengths-Based Approach within assessment and care planning
A strengths-based approach focuses on:
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What the person can do, rather than what they cannot
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Their skills, interests, relationships, and community resources
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Supporting independence, resilience, and wellbeing
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Collaborative working between professionals and the individual
🧠 Key Principles from the Care Act 2014: Local authorities must:
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Consider the person’s own strengths and capabilities
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Explore support from family, friends, and community networks
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Look at the person’s life holistically, including their ambitions and priorities
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Ensure the person is in control of their care and support decisions
🧩 Best Practices for Autism, Neurodivergence, and Mental Health to assess under the Care Act 2014.
✅ Assessment
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Use open questions to explore strengths, interests, and goals (e.g., “What do you enjoy doing?” or “What helps you feel calm and safe?”)
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Include sensory needs, communication preferences, and mental health history
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Ensure assessors have autism awareness and trauma-informed training
✅ Planning and Support
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Co-produce care plans with the individual, focusing on what matters most to them
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Recognise and build on soft strengths (e.g., creativity, loyalty, attention to detail) and hard strengths (e.g., housing, finances, health)
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Use strengths-mapping to identify personal and community assets
✅ Service Delivery
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Offer reasonable adjustments in education, work, and volunteering
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Promote peer support, mentoring, and advocacy
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Ensure services are accessible, inclusive, and emotionally safe
✅Trauma-informed approach and practice within assessment and care and support delivery
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Trauma-informed practice with people relies on developing strong interpersonal and technical skills, and relationship-based practice.
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Trauma-informed, relationship-based practice - grounded in a comprehensive understanding of trauma and its impacts. This includes trauma arising from stigma, rejection, the emotional cost of masking, and unmet needs related to Autism Spectrum Disorder (ASD), neurodivergence, and mental health challenges. Practitioners should recognise that these experiences can profoundly affect a person's sense of safety, identity, and wellbeing, and therefore prioritise empathy, consistency, and collaboration in all interactions.
🧠 Trauma-Informed and Neurodivergence-friendly Relationship-Based Practice/approach - Key Principles
DEVELOPMENTAL AND PSYCHOLOGICAL TRAUMA (UNDERSTANDING LIFESPAN NEGLECT AND ABUSE)
🔹 Childhood:
• Types: Physical, emotional, sexual abuse; neglect; exposure to domestic violence.
• Impact: Developmental trauma, attachment issues, neurobiological changes, mistrust of adults.
🔹 Adolescence
• Types: Peer abuse, institutional neglect, exploitation, rejection from services.
• Impact: Identity confusion, self-harm, substance misuse, and disengagement from education.
🔹 Adulthood
• Types: Intimate partner violence, financial abuse, workplace discrimination, systemic neglect (e.g. unmet care needs).
• Impact: PTSD, chronic health conditions, social isolation, loss of autonomy.
🔹 Older Age
• Types: Elder abuse (physical, emotional, financial), neglect in care settings, abandonment.
• Impact: Depression, cognitive decline, increased dependency, loss of dignity.
🧩 The possible impact of developmental and psychological trauma can be profound and long-lasting, affecting multiple domains of a person's life.
Cumulative Trauma: Earlier experiences often compound later vulnerabilities.
Intersectionality: Neurodivergence, disability, race, gender, and poverty can increase risk and reduce access to support
Attachment and relationships: Difficulty trusting others, fear of abandonment, relational instability.
Emotional regulation: Intense mood swings, difficulty managing stress, and self-harm.
Cognitive development: Impaired concentration, learning difficulties, distorted self-image.
Physical health: Chronic illness, sleep disturbances, heightened stress response.
Behavioural patterns: Risk-taking, withdrawal, aggression, masking in neurodivergent individuals.
Mental health: PTSD, anxiety, depression, dissociation.
Identity and self-worth: Shame, guilt, feeling “broken” or “othered.”
Social functioning: Isolation, avoidance of services, difficulty maintaining employment or education.
SOCIAL TRAUMA (E.G. STIGMA, REJECTION, DISCRIMINATION) - Social trauma refers to the psychological and emotional harm caused by experiences of stigma, rejection, discrimination, and exclusion—often rooted in societal attitudes, systemic inequalities, and interpersonal interactions. It can occur across the lifespan and is especially relevant for individuals who are neurodivergent, disabled, LGBTQ+, from racialised communities, or have mental health challenges [please do consider Equality Act 2010 and protected characteristics]. Examples of Social Trauma
🔹 Stigma
• Being labelled as “difficult,” “attention-seeking,” or “non-compliant” due to mental health or neurodivergent traits.
• Internalised shame from societal messages can significantly impact self-esteem, emotional well-being, and willingness to engage with community services. This may manifest as avoidance behaviours, heightened sensitivity to perceived judgment, and reluctance to seek support or participate in public activities.
🔹 Rejection
• Repeated exclusion from peer groups, services, or family due to identity or behaviour.
• Being denied access to education, housing, or employment because of a diagnosis or background.
🔹 Discrimination
• Unequal treatment in healthcare, social care, or legal systems.
• Microaggressions or overt hostility based on race, gender, disability, or neurodivergence.
🧩 Impact of Social Trauma
• Chronic anxiety, depression, or PTSD symptoms.
• Difficulty trusting professionals or forming relationships.
• Masking behaviours and emotional exhaustion.
• Increased risk of self-harm or suicide.
• Withdrawal from services or refusal of support.
SYSTEMIC TRAUMA (e.g. institutional failures, lack of support) - refers to the harm caused by institutional failures, structural inequalities, and chronic lack of support from systems that are meant to protect and serve individuals—such as health care, social care, education, housing, and justice systems, and may include:
🔹 Institutional Failures
• Being repeatedly denied access to mental health services due to rigid eligibility criteria.
• Experiencing neglect in care settings (e.g. hospitals, residential homes, supported accommodation) due to understaffing or poor training.
• Inconsistent or abrupt transitions between services (e.g. CAMHS to AMHS and/or children's social care to adults’ social care) without proper planning or relational continuity.
🔹 Lack of Support
• Long waiting lists for essential services (e.g. autism assessments, therapy, housing).
• Failure to provide reasonable adjustments for neurodivergent individuals.
• Lack of trauma-informed practice across statutory services, leading to retraumatisation.
🔹 Structural Inequality
• Lack of adequate support in the community, which results in disproportionate detention under the Mental Health Act and/or delay in discharge planning.
• Community services are overstretched or inaccessible.
• The support is reactive rather than preventative.
• Individuals with complex needs (e.g. neurodivergence, trauma histories) are misunderstood or unsupported.
• Lack of suitable accommodation or supported living.
• Delays in Care Act assessments, EHC plans or CHC funding decisions.
• Poor coordination between health, social care, and housing and other services.
• Inaccessible complaint or redress systems for people with communication or cognitive needs.
• Internal policies that exclude care leavers or disabled adults, with neurodivergence, and mental health needs from adequate health, social, or housing support.
🧩 Impact of Systemic Trauma
• Loss of trust in professionals and services.
• Avoidance or disengagement from support systems.
• Reinforced feelings of rejection, worthlessness, or invisibility.
• Compounded trauma, especially when systemic failures mirror earlier abuse or neglect.
• Extended hospital stays beyond clinical need.
• Institutionalisation and loss of independence.
• Breach of human rights (e.g. Article 5 – liberty, Article 8 – family life).
NEURODIVERGENCE-RELATED TRAUMA - Neurodivergence-related trauma refers to the emotional and psychological harm experienced by neurodivergent individuals—such as those with Autism Spectrum Disorder (ASD), ADHD, Tourette’s, or other cognitive differences—due to chronic misunderstanding, exclusion, and systemic failures.
🔹 Misdiagnosis or Late Diagnosis
• Being misunderstood or labelled as “difficult,” “lazy,” or “attention-seeking.”
• Missing out on early support, leading to compounded trauma.
🔹 Sensory Overload and Environmental Stress
• Exposure to overwhelming environments (e.g. noisy classrooms, bright lights) without accommodations which can trigger shutdowns, meltdowns, or dissociation.
• Unmet sensory and communication needs
🔹 Social Rejection and Bullying
• Isolation from peers, exclusion from activities, or being targeted for being “different.”
• Reinforces feelings of shame, fear, and low self-worth.
🔹 Systemic Neglect
• Lack of access to appropriate services, reasonable adjustments, or trauma-informed care.
• Repeated invalidation by professionals or institutions.
• Exclusion from services
🔹 Unique trauma responses in neurodivergent individuals, especially those with Autism Spectrum Disorder (ASD), ADHD, or other cognitive differences. These responses may differ significantly from neurotypical presentations and are often misunderstood or misinterpreted in clinical and social care settings.
Unique Trauma Responses may include:
🔹 1. Masking and Camouflaging
• Suppressing natural behaviours (e.g. stimming, avoiding eye contact) to avoid rejection and/or to fit in socially.
• May lead to emotional exhaustion, identity confusion, emotional distress and burnout.
• Often mistaken for “coping well” or “not needing support.”
🔹 2. Shutdowns and Meltdowns
• Shutdowns: Withdrawal, silence, immobility, dissociation.
• Meltdowns: Intense emotional outbursts, often triggered by sensory overload or emotional distress.
• These are trauma responses, not behavioural problems.
🔹 3. Rejection Sensitivity Dysphoria (RSD) and Rejection Sensitivity Difficulties
• Extreme emotional pain in response to perceived criticism or rejection.
• Can lead to avoidance of relationships, services, or self-advocacy.
• Sudden mood changes or shutdowns after perceived rejection
• Difficulty trusting others or forming relationships
• Extreme emotional pain from minor criticism or social exclusion
• Avoidance of social or public situations due to fear of rejection
🔹 4. Hypervigilance and Sensory Defensiveness
• Heightened alertness to social or sensory threats.
• May present as irritability, avoidance, or refusal to engage.
🔹 5. Emotional Dysregulation
• Difficulty identifying, expressing, or managing emotions.
• May be misinterpreted as aggression, defiance, or instability.
🔹 6. Selective Mutism or Communication Shutdown
• Temporary inability to speak or communicate under stress.
• Often misunderstood as non-compliance or lack of capacity.
🔹 7. Avoidance of Services
• Due to past trauma, invalidation, or sensory/environmental barriers, they may be labelled as “non-engagement” when actually a protective trauma-informed response is required.
Assessment and care planning - Core Practice Elements
Safety and Trust
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Create environments where people feel physically and emotionally safe.
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Use consistent, predictable communication and boundaries.
Empowerment and Choice
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Offer real choices in care planning, staffing (e.g. gender preferences), and communication methods.
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Respect and promote autonomy, even when capacity is fluctuating.
Collaboration and Mutuality
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Build relationships with people and families based on equality, not hierarchy.
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Co-produce plans with the person and their support network.
Cultural and Identity Awareness
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Recognise how race, gender, neurodivergence, and disability intersect with trauma and engagement.
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Avoid pathologising neurodivergent traits.
Understanding Behaviour as Communication
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Reframe “challenging behaviour” as expressions of unmet needs or distress.
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Avoid punitive responses; use curiosity and compassion.
Trauma-informed and neurodivergent-friendly practice
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Co-production of services with lived experience experts.
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Flexible, person-centred pathways that adapt to individual needs.
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Staff training in trauma-informed and neurodivergent-affirming practice.
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Accountability mechanisms that allow individuals to challenge poor care safely.
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Relational Safety and continuity—minimising staff changes and ensuring warm handovers. Ensure consistency in staffing—avoid abrupt changes. Respect gender preferences for staff, especially in trauma-related cases. Build trust through predictable routines and transparency.
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Early intervention: Strengthen local authority, community mental health teams, PCNs, and voluntary sector partnerships.
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Relational continuity: Avoid abrupt transitions between CAMHS and AMHS; maintain trusted professionals.
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Flexible commissioning: Fund bespoke packages (e.g. trauma-informed supported living, gender-matched staff).
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Legal and Systemic advocacy
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Use Section 117, Chapter 16 Care and Support guidance, CETRs, DSRs, and Court of Protection and any other relevant guidance and legislation to prevent unnecessary detention
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Challenge delays in discharge planning and prevent risk of admission and/or deterioration of mental health.
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Challenge service barriers that exclude neurodivergent individuals.
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Escalate unmet needs using legal frameworks (e.g. Care Act, SEND 0-25 [Children and Family Act 2014 Act], Equality Act 2010, etc.).
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Use peer support or lived experience workers to bridge trust gaps.
Trauma-Informed and Neurodivergence-friendly Relationship-Based Practice/approach - should include:
1. Assessment and Engagement
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Use sensory-friendly environments for assessments
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Offer quiet, low-stimulation spaces for meetings or assessments.
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Allow control over lighting, seating, and noise levels.
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Provide sensory tools (e.g. weighted blankets, fidget items) where appropriate.
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Communication and Interaction
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Use clear, direct, and respectful language and avoid clinical jargon without explanation.
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Offer alternative formats (e.g. visual aids, easy-read documents, video calls).
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Avoid pressuring for eye contact or rapid verbal responses.
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Validate masking behaviours and gently explore underlying needs.
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Check for masking behaviours and gently explore underlying distress.
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Offer gender-matched staff for individuals with trauma histories.
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Allow breaks and pacing during meetings to reduce overwhelm.
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Validate lived experience without pathologizing neurodivergent traits and avoid minimising distress.
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Validate exhaustion, meltdowns, masking and offer safe spaces and neurodivergent-affirming support
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Explore sensory sensitivities, past trauma with services, and offer alternatives
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Build consistent relationships, avoid abrupt staff changes, and validate emotional pain.
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Use inclusive language and challenge discriminatory practices.
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Offer choice and control in care planning and communication.
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Build relational safety through consistency, empathy, and transparency.
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Trauma-Informed Assessment: Explore history across life stages, not just current presentation.
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Safeguarding Across the Lifespan: Use adult and child safeguarding frameworks flexibly and holistically.
2. Trauma-Informed and Neurodivergence-friendly care, support planning, and service delivery
🧍♂️ Relationship Building
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Prioritise consistency in staffing to reduce relational trauma.
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Build trust through predictable routines and transparency.
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Co-produce care plans with the person, respecting their autonomy.
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Avoid punitive responses to behaviour; use curiosity and compassion.
🏠 Environment and Support
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Adapt environments to meet sensory and communication needs.
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Ensure safe spaces are available during crises or emotional overload.
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Use peer support or lived experience workers where possible.
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Offer flexible support models, including direct payments or hybrid care.
🧩 Multiagency Practice
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Share and promote trauma-informed principles across MDTs, including housing, education, and health.
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Use joint planning tools (e.g. Section 117 plans, CETRs, DSRs, the Care Act 2014) to embed trauma-informed care.
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Escalate unmet needs with reference to legal duties and trauma impact.
Trauma-Informed & Neurodivergent-Friendly best practice and core Principles
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Relational safety: Build trust through consistency, transparency, and empathy.
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Empowerment: Offer choice and control in care planning. Validate strengths, autonomy, and lived experience.
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Validation: Recognise and affirm the impact of trauma without pathologising.
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Adaptation: Modify environments and communication to reduce distress and sensory overload.
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Collaboration: Work across agencies to address unmet needs holistically. Co-produce plans with the person and their support network.
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Safety: Create environments that feel physically and emotionally safe.
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Trustworthiness: Be consistent, transparent, and predictable.
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Choice: Offer control over how, when, and where support is delivered.
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Neurodivergent Affirmation: Respect neurodivergent identities and avoid pathologising traits.
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Transitions: Co-produced early planning, Gradual transitions, visual timelines,
🧠 Reported Difficulties Without Formal Diagnosis or Illness - Even in the absence of a formal diagnosis, individuals may report functional difficulties that significantly affect their daily life and wellbeing. These challenges may: Indicate underlying neurodivergence or mental health needs, Require further assessment under the Care Act 2014, Impact one or more wellbeing domains,
✅ Best Practice: Do not delay assessment due to lack of diagnosis—eligibility is based on need, not label. Use a strengths-based approach to explore what matters most to the individual. Refer for further assessment (e.g., autism, mental health, learning disability) if appropriate. Document reported difficulties clearly and consider preventative or low-level support options.
Do you, or your family members, need support?
I can assist with most Social Work assessments, including:
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Social Care Needs Assessments and Reviews
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SEND (EHCP) Reports - The report can make recommendations in relation to:
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Section D – social care needs
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Sections F or H – provisions required to meet those needs
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Social Work Assessment 1: The Care Act 2014: Adults 18+
The Care Act 2014: Strengths-Based Assessment and care and support planning - Specifically tailored for individuals with Autism Spectrum Disorder (ASD), neurodivergence, or mental health needs, and aligned with the Care Act 2014 and trauma-informed principles - Adults 18+
Social care needs assessments are usually completed by local authorities (social services), who hold a statutory duty to assess a person's care needs when it appears that support may be required. The assessment can be requested by professionals, organisations, or individuals with needs and their families.
Kind Minds with KM offers support with the following independent, neurodivergent-affirming self-assessments that honour lived experience, emotional safety, and person-centred insight.
✅ Independent Assessment for Self-Funded Care
Not everyone involves the local authority in their care. Some individuals choose to arrange and pay for their own support, often referred to as self-funding, and they can request an independent social care assessment to help with care and support planning.
🔁 Independent Assessment for a Second Opinion
Others may disagree with the outcome of a local authority assessment and seek a second opinion.
📝 Supported Self-Assessment
Others may also request a supported self-assessment. A local authority must offer a supported self-assessment if the adult is willing and able to undertake one. [1]
Chapter 6.3 – Care and Support guidance [2] advises that:
6.3 An ‘assessment’ must always be appropriate and proportionate. It may come in different formats and can be carried out in various ways, including but not limited to:
• a face-to-face assessment between the person and an assessor, whose professional role and qualifications may vary depending on the circumstances, but who must always be appropriately trained and have the right skills and knowledge
• a supported self-assessment, which should use similar assessment materials as used in other forms of needs or carers’ assessments, but where the person completes the assessment themselves and the local authority assures itself that it is an accurate reflection of the person’s needs (for example, by consulting with other relevant professionals and people who know the person with their consent)
• an online or phone assessment, which can be a proportionate way of carrying out assessments (for example where the person’s needs are less complex or where the person is already known to the local authority and it is carrying out an assessment following a change in their needs or circumstances)
• a joint assessment, where relevant agencies work together to avoid the person undergoing multiple assessments (including assessments in a prison, where local authorities may need to put particular emphasis on cross-agency cooperation and sharing of expertise)
• a combined assessment, where an adult’s assessment is combined with a carer’s assessment and/or an assessment relating to a child so that interrelated needs are properly captured and the process is as efficient as possible
Sources:
[1] https://www.scie.org.uk/assessment-and-eligibility/practice-examples/supported-self-assessment/
[2] https://www.gov.uk/government/publications/care-act-statutory-guidance/care-and-support-statutory-guidance#first-contact-and-identifying-needs
🧾 Independent Assessment Instructed by the Local Authority
Local authorities have a statutory duty to assess a person's care needs when it appears that support may be required.
However, due to resource constraints or systemic backlogs, thousands of individuals have experienced delays, with some waiting over six months for an initial assessment. This delay can leave people without appropriate care, support, or clarity about their options, especially when their needs are urgent or complex.
“Independent assessment instructed by the local authority” refers to a situation where a local authority (e.g., social services) commissions an external, independent social worker or agency to carry out a social care needs assessment on their behalf.
🔍 What It Means in Practice
Why it happens: Local authorities may instruct independent professionals when:
• Their internal teams are overstretched or facing delays.
• A neutral, unbiased perspective is needed (e.g. in contested cases).
• The person being assessed or their family requests a second opinion.
Kind Minds with KM can also be instructed by the local authority to complete a social care needs assessment for adults or children.
Social Work Assessment 2: Special Educational Needs & Disability (SEND) and The Care Act 2014 -
‘Preparing for Adulthood' - year 9 + [age 13/14]
’The Care Act 2014: Strengths-Based Transition Assessment and care and support planning specifically tailored for individuals with Autism Spectrum Disorder (ASD), neurodivergence, or mental health needs, and aligned with the Care Act 2014 and trauma-informed principles - for young people with special educational needs (SEN) who have an Education, Health and Care (EHC) plan under the Children and Families Act 2014.
The preparation for adulthood must begin from year 9, and the transition assessment should be undertaken as part of one of the annual statutory reviews of the EHC plan, and it should inform a plan for the transition from children’s to adult care and support.
[Chapter 16 of the Care and Support Statutory Guidance under the Care Act 2014, - local authorities’ legal duties for transition from children's social care to adults' social care]
Chapter 16 of the Care and Support Statutory Guidance under the Care Act 2014, - local authorities’ legal duties for transition from children social care to adults social care
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16.11 For young people with special educational needs (SEN) who have an Education, Health and Care (EHC) plan under the Children and Families Act 2014, preparation for adulthood must begin from year 9 - see Special Educational Needs & Disability (SEND) Code of Practice ‘Preparing for Adulthood’. The transition assessment should be undertaken as part of one of the annual statutory reviews of the EHC plan and should inform a plan for the transition from children’s to adult care and support.
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16.12 Equally for those without EHC plans, early conversations with local authorities about preparation for adulthood are beneficial – when these conversations begin to take place will depend on individual circumstances. For care leavers, local authorities should consider using the statutory Pathway Planning process as the opportunity to carry out a transition assessment where appropriate.
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16.36 Similarly, for young people and carers who do not have an EHC plan, but who already have other plans under children’s legislation, the transition assessment should build on existing information.
Care Needs Assessment Reports to Inform EHCPs and support people with Special Educational Needs & Disability (SEND)
Kind Minds with KM LTD can be instructed to complete a care needs assessment report to inform the EHCP. A care needs assessment report will identify precisely what a person’s care and support needs are and the type of provision required to meet them. The care needs assessment report to inform the EHCP can be requested by the local authority (Independent assessment instructed by the local authority), but also by parents to either help inform the EHCP or to support SEND (EHCP) Tribunal Reports.
✉️ Request by Parents to Inform EHCP Plan
SEN.HELP.ORG.UK provides many letter templates for parents to request EHC assessment as well to support the appeal process against the decisions made by the local authority.
https://www.sen-help.org.uk/other/downloads/
Kind Minds with KM LTD can share a template letter for parents, on being informed the Local Authority has agreed to undertake an EHC Needs Assessment, to tell the Local Authority the professionals they would like to be asked for a report as part of the EHC Needs Assessment as well as a reminder about Regulation 6 (1) of SEND Regs 2014, so they can inform the Local Authority which professionals the parents would like involved in the assessment.
📜 Regulation 6(1) of the SEND Regulations 2014
Regulation 6(1) of the SEND Regulations 2014 requires the Local Authority to seek advice from a range of professionals — including educational, psychological, medical, and social care experts — and to consider the parents’ views when selecting who should contribute. The reminder reinforces the statutory duty to involve appropriate individuals and to respect parental input.
The Special Educational Needs and Disability Regulations 2014 – Information and advice to be obtained of EHC Needs Assessments:
6.—(1) Where the local authority secures an EHC needs assessment for a child or young person, it must seek the following advice and information, on the needs of the child or young person, and what provision may be required to meet such needs and the outcomes that are intended to be achieved by the child or young person receiving that provision—
(a) Advice and information from the child's parent or the young person
(b) Educational advice and information
From the head teacher or principal of the school or post-16 or other institution that the child or young person is attending
If unavailable, from a person with experience of teaching children or young people with special educational needs
If not attending any institution, from a person responsible for educational provision
If the parent is a serving member of Her Majesty's armed forces, also from the Secretary of State for Defence
(c) Medical advice and information from a health care professional identified by the responsible commissioning body
(d) Psychological advice and information from an educational psychologist
(e) Advice and information in relation to social care
(f) Advice and information from any other person the local authority thinks is appropriate
(g) Advice and information in relation to preparation for adulthood and independent living (for Year 9 and above)
(h) Advice and information from any person the child's parent or young person reasonably requests that the local authority seek advice from
Source: https://www.legislation.gov.uk/uksi/2014/1530/regulation/6
Parents have the right to request input from specific professionals who know their child well or whose expertise is relevant to the child’s needs. This ensures the assessment is holistic, accurate, and tailored. They can request an independent assessment completed by Kind Minds with KM LTD (independent social worker).
⚖️ The First-Tier Tribunal (Special Educational Needs and Disabilities) – SEND (EHCP) Tribunal Reports
The First-Tier Tribunal (Special Educational Needs and Disabilities) is an essential tool for a person, or their representative, to appeal against the contents of an EHCP or Statement of Special Educational Needs if you live in Wales.
🧾 Kind Minds with KM LTD – Tribunal-Ready Reports
Kind Minds with KM LTD can be instructed to complete a care needs assessment report to inform the EHCP.
A care needs assessment report will identify exactly what a person’s care and support needs are and the type of provision required to meet them. The report can make recommendations in relation to:
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Section D – social care needs
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Sections F or H – provisions required to meet those needs
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Further relevant guidance:
From 1 September 2014, all the organisations listed in paragraph IV must have regard to Special educational needs and disability Code of practice: 0 to 25 years - Statutory guidance for organisations which work with and support children and young people who have special educational needs or disabilities.
https://www.gov.uk/government/publications/send-code-of-practice-0-to-25
The most important/relevant part of the SEND 0-25 guidance.
Special educational needs (SEN)
A child or young person has SEN if they have a learning difficulty or disability which calls for special educational provision to be made for him or her. A child of compulsory school age or a young person has a learning difficulty or disability if he or she:
• has a significantly greater difficulty in learning than the majority of others of the same age, or
• has a disability which prevents or hinders him or her from making use of facilities of a kind generally provided for others of the same age in mainstream schools or mainstream post-16 institutions
Disabled children and young people Many children and young people who have SEN may have a disability under the Equality Act 2010 – that is ‘…a physical or mental impairment which has a long-term and substantial adverse effect on their ability to carry out normal day-to-day activities’.
This definition provides a relatively low threshold and includes more children than many realise: ‘long-term’ is defined as ‘a year or more’ and ‘substantial’ is defined as ‘more than minor or trivial’. This definition includes sensory impairments such as those affecting sight or hearing, and long-term health conditions such as asthma, diabetes, epilepsy, and cancer.
Children and young people with such conditions do not necessarily have SEN, but there is a significant overlap between disabled children and young people and those with SEN. Where a disabled child or young person requires special educational provision they will also be covered by the SEN definition.
The Equality Act 2010 sets out the legal obligations that schools, early years providers, post-16 institutions, local authorities and others have towards disabled children and young people:
• They must not directly or indirectly discriminate against, harass or victimise disabled children and young people 16
• They must not discriminate for a reason arising in consequence of a child or young person’s disability
• They must make reasonable adjustments, including the provision of auxiliary aids and services, to ensure that disabled children and young people are not at a substantial disadvantage compared with their peers. This duty is anticipatory – it requires thought to be given in advance to what disabled children and young people might require and what adjustments might need to be made to prevent that disadvantage
• Public bodies, including further education institutions, local authorities, maintained schools, maintained nursery schools, academies and free schools are covered by the public sector equality duty and, when carrying out their functions, must have regard to the need to eliminate discrimination, promote equality of opportunity and foster good relations between disabled and non disabled children and young people. Public bodies also have specific duties under the public sector equality duty and must publish information to demonstrate their compliance with this general duty and must prepare and publish objectives to achieve the core aims of the general duty. Objectives must be specific and measurable. The general duty also applies to bodies that are not public bodies but that carry out public functions.
Such bodies include providers of relevant early years education, non-maintained special schools, independent specialist providers and others making provision that is funded from the public purse.
The duties cover discrimination in the provision of services and the provision of education, including admissions and exclusions. All providers must make reasonable adjustments to procedures, criteria and practices and by the provision of auxiliary aids and services. Most providers must also make reasonable adjustments by making physical alterations. Schools and local authority education functions are not covered by this last duty, but they must publish accessibility plans (and local authorities, accessibility strategies) setting out how they plan to increase access for disabled pupils to the curriculum, the physical environment and to information. xxi. xxii. School governing bodies and proprietors must also publish information about the arrangements for the admission of disabled children, the steps taken to prevent disabled children being treated less favourably than others, the facilities provided to assist access of disabled children, and their accessibility plans.
Where a child or young person is covered by SEN and disability legislation, reasonable adjustments and access arrangements should be considered as part of SEN planning and review. Where school governors are publishing information about 17 their arrangements for disabled children and young people, this should be brought together with the information required under the Children and Families Act 2014.
Organisations may find it helpful to consider the following related guidance:
o Working Together to Safeguard Children (2013): Statutory guidance from the Department for Education which sets out what is expected of organisations and individuals to safeguard and promote the welfare of children
o The Children Act 1989 Guidance and Regulations Volume 2 (Care Planning Placement and Case Review) and Volume 3 (Planning Transition to Adulthood for Care Leavers): Guidance setting out the responsibilities of local authorities towards looked after children and care leavers
o Equality Act 2010: Advice for schools: Non-statutory advice from the Department for Education, produced to help schools understand how the Equality Act affects them and how to fulfil their duties under the Act
o Reasonable adjustments for disabled pupils (2012): Technical guidance from the Equality and Human Rights Commission
o Supporting pupils at school with medical conditions (2014): statutory guidance from the Department for Education
o The Mental Capacity Act Code of Practice: Protecting the vulnerable (2005)
Principles
Section 19 of the Children and Families Act 2014 sets out the principles underpinning the legislation and the guidance in this Code of Practice.
Principles underpinning this Code of Practice
1.1 Section 19 of the Children and Families Act 2014 makes clear that local authorities, in carrying out their functions under the Act in relation to disabled children and young people and those with special educational needs (SEN), must have regard to:
o the views, wishes and feelings of the child or young person, and the child’s parents
o the importance of the child or young person, and the child’s parents, participating as fully as possible in decisions, and being provided with the information and support necessary to enable participation in those decisions
o the need to support the child or young person, and the child’s parents, in order to facilitate the development of the child or young person and to help them achieve the best possible educational and other outcomes, preparing them effectively for adulthood
1.2 These principles are designed to support:
o the participation of children, their parents and young people in decision- making
o the early identification of children and young people’s needs and early intervention to support them
o greater choice and control for young people and parents over support
o collaboration between education, health and social care services to provide support
o high quality provision to meet the needs of children and young people with SEN 19
o a focus on inclusive practice and removing barriers to learning • successful preparation for adulthood, including independent living and employment
The principles in practice Participating in decision making
1.3 Local authorities must ensure that children, their parents and young people are involved in discussions and decisions about their individual support and about local provision.
1.4 Early years providers, schools and colleges should also take steps to ensure that young people and parents are actively supported in contributing to needs assessments, developing and reviewing Education, Health and Care (EHC) plans. Specifically, local authorities must
o ensure the child’s parents or the young person are fully included in the EHC needs assessment process from the start, are fully aware of their opportunities to offer views and information, and are consulted about the content of the plan (Chapter 9)
o consult children with SEN or disabilities, and their parents and young people with SEN or disabilities when reviewing local SEN and social care provision (Chapter 4)
o consult them in developing and reviewing their Local Offer (Chapter 4)
o make arrangements for providing children with SEN or disabilities, and their parents, and young people with SEN or disabilities with advice and information about matters relating to SEN and disability (Chapter 2)
1.5 Clinical Commissioning Groups (CCGs), NHS Trusts or NHS Foundation Trusts who are of the opinion that a child under compulsory school age has or probably has SEN or a disability must give the child’s parents the opportunity to discuss their opinion with them before informing the local authority (see paragraph 1.16).
1.6 Children have a right to receive and impart information, to express an opinion and to have that opinion taken into account in any matters affecting them from the early years. Their views should be given due weight according to their age, maturity and capability (Articles 12 and 13 of the United Nations Convention on the Rights of the Child).
1.7 Parents’ views are important during the process of carrying out an EHC needs assessment and drawing up or reviewing an EHC plan in relation to a child. Local authorities, early years providers and schools should enable parents to share their knowledge about their child and give them confidence that their views and contributions are valued and will be acted upon. At times, parents, teachers and others may have differing expectations of how a child’s needs are best met. Sometimes these discussions can be challenging but it is in the child’s best interests for a positive dialogue between parents, teachers and others to be maintained, to work through points of difference and establish what action is to be taken.
1.8 The Children and Families Act 2014 gives significant new rights directly to young people once they reach the end of compulsory school age (the end of the academic year in which they turn 16). When a young person reaches the end of compulsory school age, local authorities and other agencies should normally engage directly with the young person rather than their parent, ensuring that as part of the planning process they identify the relevant people who should be involved and how to involve them. Chapter 8 sets out how some decision-making rights transfer from parents to young people at this stage and how families will continue to play a critical role in supporting a young person with SEN. Most young people will continue to want, or need, their parents and other family members to remain involved in discussions and decisions about their future. Some young people, and possibly some parents, will not have the mental capacity to make certain decisions or express their views. Provision is made in the Children and Families Act (Section 80) to deal with this and Annex 1 to this Code provides further details.
Supporting children, young people and parents to participate in decisions about their support
1.9 Local authorities must ensure that children, young people and parents are provided with the information, advice and support necessary to enable them to participate in discussions and decisions about their support. This should include information on their rights and entitlements in accessible formats and time to prepare for discussions and meetings. From Year 9 onwards, particularly for those with Education, Health and Care plans, local authorities, schools, colleges and other agencies will be involved in the planning for their transition to adult life, the future and how to prepare for it, including their health, where they will live, their relationships, control of their finances, how they will participate in the community and achieve greater independence. Further details are given in Chapter 8. Local authorities should help children and their families prepare for the change in status under SEN law that occurs once the child reaches the end of compulsory school age.
1.10 Local authorities should consider whether some young people may require support in expressing their views, including whether they may need support from an advocate (who could be a family member or a professional). Local authorities must not use the views of parents as a proxy for young people’s views. Young people will have their own perspective and local authorities should have arrangements in place to engage with them directly.
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Identifying children and young people’s needs
1.14 Local authorities must carry out their functions with a view to identifying all the children and young people in their area who have or may have SEN or have or may have a disability (Section 22 of the Children and Families Act 2014).
1.15 Local authorities may gather information on children and young people with SEN or disabilities in a number of ways. Anyone can bring a child or young person who they believe has or probably has SEN or a disability to the attention of a local authority (Section 24 of the Children and Families Act 2014) and parents, early years providers, schools and colleges have an important role in doing so.
1.17 A child’s parents, young people, schools and colleges have specific rights to request a needs assessment for an EHC plan and children and their parents and young people should feel able to tell their school or college if they believe they have or may have SEN [,,,]
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1.21 Parents of children who have an EHC plan and young people who have such a plan have a right to ask for a particular educational institution to be named in the plan and for a Personal Budget for their support. Guidance is given in Chapter 9.
Collaboration between education, health and social care services to provide support
1.22 If children and young people with SEN or disabilities are to achieve their ambitions and the best possible educational and other outcomes, including getting a job and living as independently as possible, local education, health and social care services should work together to ensure they get the right support.
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A focus on inclusive practice and removing barriers to learning
1.26 As part of its commitments under articles 7 and 24 of the United Nations Convention of the Rights of Persons with Disabilities, the UK Government is committed to inclusive education of disabled children and young people and the progressive removal of barriers to learning and participation in mainstream education. The Children and Families Act 2014 secures the general presumption in law of mainstream education in relation to decisions about where children and young people with SEN should be educated and the Equality Act 2010 provides protection from discrimination for disabled people.
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Supporting successful preparation for adulthood
1.39 With high aspirations, and the right support, the vast majority of children and young people can go on to achieve successful long-term outcomes in adult life. Local authorities, education providers and their partners should work together to help children and young people to realise their ambitions in relation to:
• higher education and/or employment – including exploring different employment options, such as support for becoming self-employed and help from supported employment agencies
• independent living – enabling people to have choice and control over their lives and the support they receive, their accommodation and living arrangements, including supported living
• participating in society – including having friends and supportive relationships, and participating in, and contributing to, the local community
• being as healthy as possible in adult life
1.40 All professionals working with families should look to enable children and young people to make choices for themselves from an early age and support them in making friends and staying safe and healthy. As children grow older, and from Year 9 in school at the latest, preparing for adult life should be an explicit element of conversations with children and their families as the young person moves into and through post-16 education. For children and young people in or beyond Year 9 with 28 EHC plans, local authorities have a legal duty to include provision to assist in preparing for adulthood in the EHC plan review.
1.41 Chapter 8 provides further guidance on how to support children and young people in preparing for adult life. Provision required for preparation for adulthood should inform joint commissioning of services, the Local Offer, EHC needs assessments and plans, and education and training provision for all children and young people with SEN.
Young people
2.14 Young people are entitled to the same quality and level of information, advice and support as parents. Local authorities should recognise the specific needs of this 32 group, while ensuring co-ordination and consistency in what is offered to children, young people and parents.
2.15 Young people must have confidence that they are receiving confidential and impartial information, advice and support. Staff working directly with young people should be trained to support them and work in partnership with them, enabling them to participate fully in decisions about the outcomes they wish to achieve. Young people may be finding their voice for the first time, and may need support in exercising choice and control over the support they receive (including support and advice to take up and manage Personal Budgets). Advocacy should be provided where necessary. Local authorities must provide independent advocacy for young people undergoing transition assessments, provided certain conditions are met (see section 67 of the Care Act 2014).
2.16 The service should direct young people to specialist support to help them prepare for employment, independent living (including housing) and participation in society and should provide access to careers advice where needed. Duties on schools and colleges to give impartial careers advice are covered in Chapter 8, Preparing for adulthood from the earliest years.
Personal Budgets
3.38 Young people and parents of children who have EHC plans have the right to request a Personal Budget, which may contain elements of education, social care and health funding […]
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Children’s social care
3.49 Where a child or young person has been assessed as having social care needs in relation to their SEN or disabilities social care teams:
o must secure social care provision under the Chronically Sick and Disabled Persons Act (CSDPA) 1970 which has been assessed as being necessary to support a child or young person’s SEN and which is specified in their EHC plan
o should provide early years providers, schools and colleges with a contact for social care advice on children and young people with SEN and disabilities
o must undertake reviews of children and young people with EHC plans where there are social care needs
o should make sure that for looked after children and care leavers the arrangements for assessing and meeting their needs across education, health and social care are co-ordinated effectively within the process of care and pathway planning, in order to avoid duplication and delay, to include in particular liaising with the Virtual School Head (VSH) for looked after children
3.50 Where children or young people with SEN or disabilities also have a child in need or child protection plan, the social worker within the SEN team should ensure the statutory timescales for social care assessments are met and any assessments are aligned with EHC needs assessments wherever possible. Working Together to Safeguard Children (2013) gives full details. A link is available in the References section under Chapter 3.
https://www.gov.uk/government/publications/working-together-to-safeguard-children--2
Adult social care
3.51 Young people with SEN or disabilities turning 18 may become eligible for adult social care services, regardless of whether they have an EHC plan or whether they have been receiving services from children’s social care.
3.52 The Care Act 2014 and the associated regulations and guidance set out the requirements on local authorities when young people are approaching, or turn, 18 and are likely to require an assessment for adult care and support. These are intended to support effective transition from children’s to adult social care services. For those already receiving support from children’s services, the Care Act makes it clear that local authorities must continue to provide children’s services until adult provision has started or a decision is made that the young person’s needs do not meet the eligibility criteria for adult care and support following an assessment. Children’s services must not be discontinued simply because a young person has reached their 18th birthday. More information on this is given in Chapter 8, Preparing for Adulthood.
3.55 The transition from children’s to adult services needs to be well managed and should take place at a time that is appropriate for the individual. This is particularly important where young people’s assessed needs do not meet eligibility criteria for adult services.
3.56 Local authorities and their partners should work together to ensure effective and well supported transition arrangements are in place; that assessment and review processes for both Care plans and EHC plans are aligned; that there is effective integration with health services, and that there is a good range of universal provision 52 for inclusion in the Local Offer. Young people and their families should not be expected to repeatedly provide duplicate information to different services, or to attend numerous reviews, or receive support that is not co-ordinated and joined up. There should be clear and joined-up decision-making processes and lines of accountability for considering when the transition to adult services should take place and ensuring that children’s services continue to be in place for as long as required.
3.57 Local authorities should consider ways of supporting carers. Parent carers have often had to give up paid work after their child leaves full time education. Loss of paid employment can have a significant impact on the carer’s wellbeing and self esteem as well as a significant impact on the family’s financial circumstances. Taking a whole family approach to care and support planning that sets out a ‘five-day offer’ for a young person and support for a carer to manage an increased caring role (which ideally allows them to stay in paid work if they wish to do so) can help families manage the transition and save money by avoiding costly out-of-area placements. More information on this is provided in the Care Act Statutory Guidance. Chapter 8 of this Code provides guidance on packages of provision across five days for young people with EHC plans.
3.58 Support for carers includes any support assessed as being reasonably required by the learning difficulties and disabilities which result in the child or young person having SEN. It can include any services assessed under an early help assessment and/or under Section 17 or Section 47 of the Children Act 1989 or eligible needs identified by assessments under adult care provisions. It can also include services for parents and carers which will support the child’s outcomes, such as mental health support.
Social care and other provision
4.42 The Local Offer must include information about social care services and other provision supporting children and young people with SEN or disabilities. This should include:
o childcare
o leisure activities
o support for young people when moving between social care services for children to social care services for adults, including information on how and when the transfer is made
o support for young people in living independently and finding appropriate accommodation and employment
4.44 Local authorities must provide a range of short breaks for disabled children, young people and their families, and prepare a short breaks duty statement giving details of the local range of services and how they can be accessed, including any eligibility criteria (The Breaks for Carers of Disabled Children Regulations 2011). Local authorities must publish a short breaks statement on their website and review it on a regular basis, taking account of the needs of local parents and carers. The statement will therefore form a core part of the Local Offer.
4.45 Parent carers of disabled children often have significant needs for support, to enable them to support their children effectively. It is important that children’s and adult services work together to ensure needs are met. The Local Offer must set out the support groups and others who can support parent carers of disabled children and how to contact them. Part 3 of the Children Act 1989 gives individuals with parental responsibility for a disabled child the right to an assessment of their needs by a local authority. Local authorities must assess on the appearance of need, as well as on request, and must explicitly have regard to the wellbeing of parent carers in 72 undertaking an assessment of their needs. Following a parent carer’s needs assessment, the local authority must decide whether the parent carer needs support to enable them to support their disabled child and, if so, decide whether to provide services under section 17 of the Children Act 1989. Relevant services may include short breaks provision and support in the home.
Support available to children and young people to help them prepare for adulthood
4.52 Local authorities must set out in the Local Offer the support available to help children and young people with SEN or disabilities move into adulthood. Support should reflect evidence of what works in achieving good outcomes and must include information about preparing for and finding employment, finding somewhere to live, and participating in the community.
4.53 Preparing for and finding employment should include information about:
o pathways to employment such as apprenticeships, traineeships and supported internships and how to apply for them
o support available from supported employment services, such as job coaches, and how to obtain that support
o support available from employment agencies
o support available from Year 8 to help children and young people plan their careers, including signposting to where they can obtain information and advice about setting up their own enterprise, and
o financial support available, including from the Department for Work and Pensions, when people with learning difficulties or disabilities are looking for work or once they are employed, including ‘in work’ benefit calculations and specialist advice on Work Choice, Residential Training, The Work Programme and Access to Work
4.54 Finding somewhere to live should include information about: • finding accommodation, including information about different housing options such as social housing, housing association accommodation, private renting, shared housing and shared ownership
o how to apply for accommodation, and where to get financial and other support (such as a personal assistant, assistive technology or modifications to a home) and more detailed advice on accommodation
o advice, for people eligible for social care or health support, about what support is available to help them personally, for example in managing their Personal Budget or recruiting a personal assistant, and
o opportunities and support to learn the skills needed to live in supported, semi supported or independent accommodation
4.55 Participating in the community should include information about:
o leisure and social activities, including opportunities for influencing local decision-making
o how young people can access mainstream community facilities and local youth services (for example, access to staff with expertise in supporting young people with different needs)
o volunteering opportunities and the support available to access them
o care support available to help young people access social opportunities (for example, a personal assistant or assistive technology) and develop friendships, and how to apply for that support, and
o support in using the internet and social media to find information and develop and maintain friendships, including where they can go for guidance on using the internet safely and how to protect themselves against cyber-bullying and exploitation
4.56 The Care Act 2014 requires local authorities to establish and maintain a service for providing people in its area with information and advice about the adult care and support system.
Identifying SEN in schools
6.14 All schools should have a clear approach to identifying and responding to SEN. The benefits of early identification are widely recognised – identifying need at the earliest point and then making effective provision improves long-term outcomes for the child or young person.
6.15 A pupil has SEN where their learning difficulty or disability calls for special educational provision, namely provision different from or additional to that normally available to pupils of the same age. Making higher quality teaching normally available to the whole class is likely to mean that fewer pupils will require such 94 support. Such improvements in whole-class provision tend to be more cost effective and sustainable.
6.16 Schools should assess each pupil’s current skills and levels of attainment on entry, building on information from previous settings and key stages where appropriate. At the same time, schools should consider evidence that a pupil may have a disability under the Equality Act 2010 and, if so, what reasonable adjustments may need to be made for them.
6.17 Class and subject teachers, supported by the senior leadership team, should make regular assessments of progress for all pupils. These should seek to identify pupils making less than expected progress given their age and individual circumstances. This can be characterised by progress which:
o is significantly slower than that of their peers starting from the same baseline • fails to match or better the child’s previous rate of progress
o fails to close the attainment gap between the child and their peers
o widens the attainment gap
6.18 It can include progress in areas other than attainment – for instance where a pupil needs to make additional progress with wider development or social needs in order to make a successful transition to adult life.
6.19 The first response to such progress should be high quality teaching targeted at their areas of weakness. Where progress continues to be less than expected the class or subject teacher, working with the SENCO, should assess whether the child has SEN. While informally gathering evidence (including the views of the pupil and their parents) schools should not delay in putting in place extra teaching or other rigorous interventions designed to secure better progress, where required. The pupil’s response to such support can help identify their particular needs.
6.20 For some children, SEN can be identified at an early age. However, for other children and young people difficulties become evident only as they develop. All those who work with children and young people should be alert to emerging difficulties and respond early. In particular, parents know their children best and it is important that all professionals listen and understand when parents express concerns about their child’s development. They should also listen to and address any concerns raised by children and young people themselves.
6.21 Persistent disruptive or withdrawn behaviours do not necessarily mean that a child or young person has SEN. Where there are concerns, there should be an assessment to determine whether there are any causal factors such as undiagnosed learning difficulties, difficulties with communication or mental health issues. If it is thought housing, family or other domestic circumstances may be contributing to the presenting behaviour a multi-agency approach, supported by the use of approaches such as the Early Help Assessment, may be appropriate. In all cases, early identification and intervention can significantly reduce the use of more costly intervention at a later stage.
6.22 Professionals should also be alert to other events that can lead to learning difficulties or wider mental health difficulties, such as bullying or bereavement. Such events will not always lead to children having SEN but it can have an impact on wellbeing and sometimes this can be severe. Schools should ensure they make appropriate provision for a child’s short-term needs in order to prevent problems escalating. Where there are long-lasting difficulties schools should consider whether the child might have SEN. Further guidance on dealing with bullying issues can be found on the GOV.UK website – a link is given in the References section under Chapter 6.
6.23 Slow progress and low attainment do not necessarily mean that a child has SEN and should not automatically lead to a pupil being recorded as having SEN. However, they may be an indicator of a range of learning difficulties or disabilities. Equally, it should not be assumed that attainment in line with chronological age means that there is no learning difficulty or disability. Some learning difficulties and disabilities occur across the range of cognitive ability and, left unaddressed may lead to frustration, which may manifest itself as disaffection, emotional or behavioural difficulties.
6.24 Identifying and assessing SEN for children or young people whose first language is not English requires particular care. Schools should look carefully at all aspects of a child or young person’s performance in different areas of learning and development or subjects to establish whether lack of progress is due to limitations in their command of English or if it arises from SEN or a disability. Difficulties related solely to limitations in English as an additional language are not SEN.
6.25 When reviewing and managing special educational provision the broad areas of need and support outlined from 6.28 below may be helpful, and schools should review how well equipped they are to provide support across these areas. Information on these areas of need and support is also collected through the School Census and forms part of the statutory publication ‘Children and Young People with SEN: an analysis’ which is issued by DfE each year.
6.26 There is a wide range of information available on appropriate interventions for pupils with different types of need, and associated training which schools can use to ensure they have the necessary knowledge and expertise to use them. See the References section under Chapter 6 for links to organisations that provide this information.
6.27 These four broad areas give an overview of the range of needs that should be planned for. The purpose of identification is to work out what action the school needs to take, not to fit a pupil into a category. In practice, individual children or young people often have needs that cut across all these areas and their needs may change over time. For instance speech, language and communication needs can also be a feature of a number of other areas of SEN, and children and young people with an Autistic Spectrum Disorder (ASD) may have needs across all areas, including particular sensory requirements. A detailed assessment of need should ensure that the full range of an individual’s needs is identified, not simply the primary need. The support provided to an individual should always be based on a full understanding of their particular strengths and needs and seek to address them all using well evidenced interventions targeted at their areas of difficulty and where necessary specialist equipment or software. Broad areas of need
Communication and interaction
6.28 Children and young people with speech, language and communication needs (SLCN) have difficulty in communicating with others. This may be because they have difficulty saying what they want to, understanding what is being said to them or they do not understand or use social rules of communication. The profile for every child with SLCN is different and their needs may change over time. They may have difficulty with one, some or all of the different aspects of speech, language or social communication at different times of their lives.
6.29 Children and young people with ASD, including Asperger’s Syndrome and Autism, are likely to have particular difficulties with social interaction. They may also experience difficulties with language, communication and imagination, which can impact on how they relate to others.
Cognition and learning
6.30 Support for learning difficulties may be required when children and young people learn at a slower pace than their peers, even with appropriate differentiation. Learning difficulties cover a wide range of needs, including moderate learning difficulties (MLD), severe learning difficulties (SLD), where children are likely to need support in all areas of the curriculum and associated difficulties with mobility and communication, through to profound and multiple learning difficulties (PMLD), where 97 children are likely to have severe and complex learning difficulties as well as a physical disability or sensory impairment.
6.31 Specific learning difficulties (SpLD), affect one or more specific aspects of learning. This encompasses a range of conditions such as dyslexia, dyscalculia and dyspraxia.
Social, emotional and mental health difficulties
6.32 Children and young people may experience a wide range of social and emotional difficulties which manifest themselves in many ways. These may include becoming withdrawn or isolated, as well as displaying challenging, disruptive or disturbing behaviour. These behaviours may reflect underlying mental health difficulties such as anxiety or depression, self-harming, substance misuse, eating disorders or physical symptoms that are medically unexplained. Other children and young people may have disorders such as attention deficit disorder, attention deficit hyperactive disorder or attachment disorder.
6.33 Schools and colleges should have clear processes to support children and young people, including how they will manage the effect of any disruptive behaviour so it does not adversely affect other pupils. The Department for Education publishes guidance on managing pupils’ mental health and behaviour difficulties in schools – see the References section under Chapter 6 for a link.
Sensory and/or physical needs
6.34 Some children and young people require special educational provision because they have a disability which prevents or hinders them from making use of the educational facilities generally provided. These difficulties can be age related and may fluctuate over time. Many children and young people with vision impairment (VI), hearing impairment (HI) or a multi-sensory impairment (MSI) will require specialist support and/or equipment to access their learning, or habilitation support. Children and young people with an MSI have a combination of vision and hearing difficulties. Information on how to provide services for deafblind children and young people is available through the Social Care for Deafblind Children and Adults guidance published by the Department of Health (see the References section under Chapter 6 for a link).
6.35 Some children and young people with a physical disability (PD) require additional ongoing support and equipment to access all the opportunities available to their peers.
Funding for SEN support
6.99 Schools are not expected to meet the full costs of more expensive special educational provision from their core funding. They are expected to provide additional support which costs up to a nationally prescribed threshold per pupil per year. The responsible local authority, usually the authority where the child or young person lives, should provide additional top-up funding where the cost of the special educational provision required to meet the needs of an individual pupil exceeds the nationally prescribed threshold.
Statutory duties on post-16 institutions
Identifying SEN
7.10 Colleges should be involved in transition planning between school and college so that they can prepare to meet the student’s needs and ensure a successful transition into college life. Chapter 8, paragraphs 8.22 to 8.28, gives guidance to schools and colleges on how they should work together to smooth that transition. Colleges should give all applicants an opportunity before or at entry and at subsequent points, to declare whether they have a learning need, a disability or a medical condition which will affect their learning. If a student makes a declaration the college should discuss with the student how they will provide support. Any screenings and assessments should be differentiated and proportionate to the likely level of SEN.
7.11 Some needs may emerge after a student has begun a programme. Teaching staff should work with specialist support to identify where a student may be having difficulty which may be because of SEN.
7.12 Students who fell behind at school, or who are studying below level 2, should have their needs identified and appropriate support should be provided. It should not be assumed that they have SEN just because they have lower attainment levels than the majority of their peers. They may do, but this should be identified specifically and supported. Equally it should not be assumed that students working on higher level courses do not have any learning difficulty or disability that may need special educational provision.
8 Preparing for adulthood from the earliest years
This chapter is relevant for everyone working with children and young people with SEN or disabilities and is particularly relevant for those working with children and young people aged 14 and over.
It sets out how professionals across education (including early years, schools, colleges and 16-19 academies), health and social care should support children and young people with special educational needs (SEN) or disabilities to prepare for adult life, and help them go on to achieve the best outcomes in employment, independent living, health and community participation.
The principles set out in this chapter apply to all young people with SEN or disabilities, except where it states they are for those with Education, Health and Care (EHC) plans only. The term ‘colleges’ in this chapter includes all post-16 institutions with duties under the Children and Families Act 2014 (further education (FE) colleges, sixth form colleges, 16-19 academies and independent specialist colleges approved under Section 41 of the Act). High aspirations are crucial to success – discussions about longer term goals should start early and ideally well before Year 9 (age 13-14) at school. They should focus on the child or young person’s strengths and capabilities and the outcomes they want to achieve.
This chapter includes both the transition into post-16 education, and the transition from post-16 education into adult life. It covers:
• how local authorities and health services should plan strategically for the support children and young people will need to prepare for adult life
• how early years providers, schools and colleges should enable children and young people to have the information and skills they need to help them gain independence and prepare for adult life
• support from Year 9, including the content of preparing for adulthood reviews for children and young people with EHC plans • planning the transition into post-16 education
• how post-16 institutions can design study programmes and create pathways to employment
• how young people should be supported to make decisions for themselves
• Packages of provision for children and young people with EHC plans across five days a week 120
• transition to higher education • young people aged 19-25
• transition to adult health services • transition to adult social care • leaving education and training and progressing into employment
More on Chapter 8 - Special educational needs and disability code of practice: 0 to 25 years
https://www.gov.uk/government/publications/send-code-of-practice-0-to-25
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